HOSPISS LV

NGO FONDA project "Promoting a non-discriminatory model of hospice care in Latvia"

PROJECT IMPLEMENTATION AGREEMENT of the Latvian State Budget Funded Programme "NGO Fund" Contract identification number: 2024.LV/NVOF/MAC/066/11, from 09.01.2024.

Goal

The aim of the project "Promotion of a non-discriminatory model of hospice care" is to use global experience, develop and coordinate volunteer work, carry out targeted advocacy and awareness-raising activities to create and promote respectful and unprejudiced understanding of hospice services based on human choice in Latvian society among the population, state and local government employees, health care and welfare professionals, increasing the capacity of individuals to actively participate in their own health and that of their family members. 

 

Target group

The main target group of the project is people at high risk of discrimination who have a terminal terminal illness for which no cure is possible and where the medical consensus is that they have a life expectancy (remaining life expectancy of up to 6 months), as well as their relatives. The target group includes both people who currently need the service and those who will need it in the future. The secondary target group of the project is politicians, health workers, welfare workers and society in general, which is inevitably confronted with the current demographic situation and the problems of the health care system and its consequences.

 

Three main strands have been identified to achieve the project's objective:

1. Public information and education. The aim of the initiative is to raise awareness about hospice services among the Latvian public - citizens, state and local government employees, healthcare and welfare professionals. Awareness of death as a natural end of life, without prejudice, based on dignity and the right and fundamental values of human choice, with opportunities for loved ones to participate in the process.

On 20 March, the second Hospice Care Discussion Forum "The Right to Die with Dignity" sought answers to key questions such as: what is the moment of death? Is the medical understanding of the moment of death unambiguous? Is society ready to defend the idea of the right to human self-determination, including the right to refuse futile medical treatment? Will our view of the needs of our loved ones in the dying process coincide with our own wishes in the face of death? Can there be a good death? To find answers to all these questions together, we have gathered various opinion leaders - unique personalities, medical professionals, Latvian academics and scientists. The former President of Latvia, doctor Valdis Zatlers, doctor of philosophy Agita Misāne, doctor of the Palliative Care Department at RAKUS Līga Keiša-Ķirse, chief nurse of the company "Hospiss Māja" and lecturer of continuing education courses at PSKUS Tatjana Jirgensone shared their experience and thoughts, Iveta Golubovska, President of the Latvian Association of Anaesthesiologists and Reanimatologists, Signe Mežinska, Associate Professor of Bioethics at the University of Latvia, Raivis Bičevskis, Tenure Professor at the University of Latvia, and Georgs Rubenis, teacher of contemplation.

  "The Hospiss LV team invites all participants and interested parties who could not be present to read the forum report, which includes insights from the experts and helps to understand the nature of the hospice care service. 

Short video of the Forum

Video recordings of expert views and insights

The "CAFÉNICE OF THE DEAD" talk tent

State-funded palliative care: first lessons from the introduction

Interview with Georg Rubens "Maybe dying is the best thing to experience" 

Interview with antenatal care organiser Žanette Jansone

Interview with Hospiss LV board member Ilze Zosuli

What does this state-funded service for hospice care at home mean, how does it differ from the palliative care that has been available so far, who is entitled to it? Kristīne Krūze - Hermane explains the situation in an interview with Hospiss LV co-founder Ilze Zosule on "Nra.lv talks".

Volunteers increasingly entering palliative care, training needs attention - Interview with Hospiss LV volunteer Gunita Bārda in Valmiera

Interview with Olga Salmanova, hospice carer

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2. Promoting the involvement of volunteers in palliative and hospice care, as well as protecting the interests of those in society who are unable to receive a service from the state, to spend the last months, weeks or days of their lives in a hospice care service, experiencing a dignified passing away. The activity will continue to promote the Volunteer Movement among the Latvian population. Raising the prestige of volunteering as a meaningful, gratuitous way of providing help to the recipients of palliative and hospice care services (gratuitous help - donation of property, financial resources, time and knowledge). "The start of Hospiss LV cooperation with regional hospitals encourages new volunteers to join and participate in hospice volunteering activities, which gives Hospiss LV the opportunity to pay more attention to the palliative care patients in the palliative care wards of healthcare institutions, to promote the development of the volunteering movement in the Palliative Care Units of 5 regional hospitals. As a result, public awareness and understanding of the hospice care service in Latvia will be gradually increased, promoting the introduction of the hospice care system and the acceptance of the service in Latvia.

VOLUNTEERING IN HEALTH FACILITIES IN R

 

Hospiss LV charity project "HOLIDAY TABLE" brings together kind and smiling volunteers two to three times a week, who, putting aside their everyday worries, unite in a joint walk to hospitals to cheer up sick, lonely or distressed patients in Palliative, Oncology and Radiotherapy wards.

A sweet snack, a tasty drink, the sounds of live music, a warm caress and a look in the eye, a leisurely interest in the mood of the day makes someone feel a little better, or at least changes their view of everyday life in hospital, and makes someone think about how much a person is loved and needed at times when the twists and turns of life have left them stuck in a lonely hospital bed.

 

On 20 March, the second Hospice Care Discussion Forum "The Right to Die with Dignity" sought answers to key questions such as: what is the moment of death? Is the medical understanding of the moment of death unambiguous? Is society ready to defend the idea of the right to human self-determination, including the right to refuse futile medical treatment? Will our view of the needs of our loved ones in the dying process coincide with our own wishes in the face of death? Can there be a good death? To find answers to all these questions together, we have gathered various opinion leaders - unique personalities, medical professionals, Latvian academics and scientists. The former President of Latvia, doctor Valdis Zatlers, doctor of philosophy Agita Misāne, doctor of the Palliative Care Department at RAKUS Līga Keiša-Ķirse, chief nurse of the company "Hospiss Māja" and lecturer of continuing education courses at PSKUS Tatjana Jirgensone shared their experience and thoughts, Iveta Golubovska, President of the Latvian Association of Anaesthesiologists and Reanimatologists, Signe Mežinska, Associate Professor of Bioethics at the University of Latvia, Raivis Bičevskis, Tenure Professor at the University of Latvia, and Georgs Rubenis, teacher of contemplation.

Volunteering changes the value scale

"To the question of why I volunteered, I will answer with a counter-question - why not? There is no reason why not. The basic idea of Hospiss of giving life to days, not days to life, of treating people with respect until the last breath, really resonated with me," says Vivita Grase, "Team Captain" of the Hospiss LV "Stradini" volunteers, i.e. she is in charge of the "Celebration Table" in the Palliative Care, Oncology and Radiotherapy Departments of the Pauls Stradins Clinical University Hospital.

"Going to the hospital to see patients has given me many deep emotional moments and food for thought, which sometimes doesn't give me peace for a long time after the visit. People from all over Latvia have met at the hospital, each with their own pain and concerns about tomorrow. And it is not only the patients, but also their relatives, who are with their loved ones both physically and in their thoughts, and who are also in great need of emotional support. I do not know if I am entitled to give specific examples, because they are all very private stories and I very much appreciate the trust that has been shown in us.

In a hospital setting, patients with really serious health problems seem to be particularly open and honest; there is no pretence about what you say, how you feel or what you say. And of course we are touched by the many thanks for what we do and the tears of emotion "that you are like this, that you don't care".

Naturally, becoming a Hospiss LV volunteer strengthens your scale of values, allows you to assess what is really valuable, to live in the here and now and to treat others as you want to be treated. Not to live in the past or in the future, but to do the best you can now. I have gained a lot myself in a purely human sense, learning patience and empathy.

And another benefit is the wonderful people I have met thanks to Hospiss LV. My like-minded friends who make me smile when I see them, such compassionate, caring and intelligent people are right here among us."

On 28 February, Hospiss LV and Vidzeme Hospital started a volunteering project in the Chronic Patient Care Unit by signing a solemn cooperation agreement and organising the "Festive Table" project. "This is the first cooperation project of Hospiss LV outside the hospitals of the Riga region.

Uģis Muskovs, Chairman of the Board of Vidzeme Hospital, emphasizes: “Every project that helps improve the emotional well-being of our patients is commendable. We are honored to be the first to initiate cooperation with Hospice LV outside the borders of Riga. The goal, of course, is to implement quality and professional cooperation to provide support to both patients and staff, as sometimes emotional involvement is more important in the healing process than physical care.”

“Volunteer work is not just a whim or a sudden impulse to do something good. It is a promise and commitment, even a duty. A duty to the most vulnerable people, to those whom we cannot promise to visit another day, once a week, or once a month. Because by then, the patient might not be there anymore. The volunteer is an admirable person because of their selflessness and the breadth of their heart,” says Ilze Zosule, a member of the Hospice LV board.

Today, on the first day of the cooperation, trained volunteers from the Hospiss LV organisation implemented the project "Festive Table" in the Chronic Patient Care Unit of Vidzeme Hospital. "The Hospiss LV treat was certainly different from the usual hospital food and was indeed like a festive table, this time treating the patients with sweet and salty "Old Towns" prepared by Cēsis bakery Vineta and Alla Karumlāde. Patients also appreciated the coffee and ice cream decorated with blueberries, but the most heart-warming part was the attention and the leisurely conversations.

Link: Make the last days beautiful. "Hospiss LV volunteers at Vidzeme Hospital

  1. In May, we visited Ventspils to get acquainted with the North Kurzeme Regional Hospital and to present the project "Festive Table" and share our experience about hospice care and volunteering in different hospitals in Latvia.

"Hospiss LV Board Chair Ilze Neimani-Nešporu, Board Member Ilze Zosuli, Public Relations Specialist and Cooperation Coordinator Inita Silu and Volunteer Coordinator Sintija Reinbergs were welcomed by Hospiss LV Board Chair Juris Lācis, HR Manager Ilze Černova, Palliative Care Unit Head Nurse Jana Cimermane and Kurzeme Rehabilitation Centre Physiotherapist Ilze Brutāne. The conversation was also joined by Zane Cinglere from Ventspils and a large number of potential volunteers who are ready to undergo training and get involved in the project "Festive Table" in Ventspils!

The Ventspils Palliative Care Department was established in 2006 and is currently the only medical facility in Kurzeme providing inpatient palliative care services. "Looking to the future, we will seek opportunities to expand this profile and do more because the service is in demand and needed. Most often, the department receives patients with oncological diseases, heart failure, stroke aftermath, and bedsores. And the number of patients is increasing. Therefore, the work done by 'Hospice LV' is very valuable – any kind of support is significant for both patients and staff, and it draws attention to the issue of dignified death at the national level," stated the hospital's board chairman Juris Lācis.

Ilze Zosule, a board member of Hospiss LV, agrees with Juris Lāce, adding that ensuring a dignified death initially seems like a loud statement, but it consists of small steps. Ilze Neimane-Nespora, Chair of the Board of Hospiss LV, shared her volunteering experience: "The definition of hospice is to turn despair into beautiful mourning - when a professional team comes, when the family knows what to do, it turns into beautiful companionship. The story of the "festive table" is not about the food - it's about one huge system that we can all create together."

Volunteer Lienīte Ansone, who has been visiting patients in Riga hospitals for several years, reminds us to remember the role of volunteers - a volunteer cannot cure or promise health, but can give emotions. Every patient has a story, a pain, and volunteers are needed for these patients. When hospital staff are exhausted, volunteers can give emotions.

"The Hospiss LV team also went to Ventspils Palliative Care Unit with a "festive table" - a trolley with snacks, coffee, ice cream - to talk, treat and cheer up the patients, who will be happy to see the volunteers again very soon.

Thank you to Druvas Saldējums and Ramala Radošā bakery lab for donating treats for Ventspils patients.

 

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3. Identifying good practices and learning from European hospice service centres. The aim of the activity is to explore, collect and use good practices from other countries in the design and development of a hospice service in Latvia. From 17 to 19 April Hospiss LV and Hospiss Māja team had a unique and valuable opportunity to exchange experience in Salzburg. We visited a hospice inpatient unit, a hospice day centre and the management of a mobile palliative team. We saw how much effective cooperation between the organisations involved can bring, we felt that we share the same values, which are not just slogans and words in presentations, but real actions in everyday work, we realised that we are and can be on a European level. Thank you to all our supporters.

The charity HospissLV does not intend to stop at what has been achieved, namely the "mobile palliative care team services in the patient's home", available from this year, are only one part of a quality palliative and hospice care system, lacking both continuing care in the home and hospice care in hospital. To inspire further work, with the help of the Latvian Ambassador to Austria, Gunas Japiņa, and the Latvian Honorary Consul in Salzburg, HR Dr. Karl Winding, the team of Hospiss LV and the social enterprise Hospiss Māja made an educational visit to the Salzburg Hospice movement Hospiz Bewegung Salzburg, which has been operating for 30 years and has turned several of their dreams into reality!

 

In Austria, the hospice care system consists of three pillars: mobile care teams, a hospice day centre and a hospice hospital.

 

Mobile palliative care teams operate (since 1989!) on the same principle as here: an interdisciplinary team arrives at the patient's home, providing holistic care so that terminally ill people can stay at home, receive medical care and respite, and emotional support - both for the patient and for their loved ones.

 

But the dream that Salzburg colleagues turned into reality and inspired us to strive for is day hospices, which are a great support for both the patient and their family. Of course, they are available while the patient is still transportable and wants to meet others like them. Day hospices offer friendly and welcoming care outside the walls of the home. A place where medical care is combined with socialising. A palliative care doctor and nurses offer the best possible medical care, and carefully trained volunteers provide daily care and activities. It's like you're visiting someone's home, where you're seen by a doctor and, if necessary, have a procedure done. And a change of environment has been shown to increase quality of life.

Hospiz Bewegung Salzburg has two day hospices in Salzburg, and we visited the Kleingmain day hospice, which opened in 2000 as the first day hospice in Austria! Due to the high demand, larger premises were quickly needed, which was made possible thanks to the support of local politicians as well as a substantial private donation. In 2013, the Day Hospice was able to move to a larger building - a renovated former stable building.

 

Day hospice really makes you feel like you're visiting. That's why staff refer to visitors as guests or visitors, not patients. It has a spacious living area, a library, a kitchen, a green courtyard, a kitchen, a "quiet room" and even a room for smokers. There are paintings on the walls. The day starts with a shared breakfast, followed by a consultation with the hospice doctor, daily care, lunch and a nap in the comfortable club chairs. In the afternoon, a cake is baked and enjoyed. In between: various activities and conversations. The day hospice can accommodate up to ten people at a time, so it can be visited once a week to ensure that as many people as possible receive this service.

Day hospices prevent the risk of social isolation due to illness, as people can meet others like themselves who act as a support group - everyone has similar experiences and conversations take place in a safe environment. Staff have noticed that guests who are said by family members to be non-talkative at home are more relaxed when they meet others and exchange thoughts and ideas on how to cope with their situation. Guests can stay in the day hospice from 8:30 am to 4:30 pm. It is also a day of respite for loved ones, as they can use the day to do their chores in peace of mind and to take a break from everyday care.

 

When we visited the day hospital, it was midday and the whole house smelled like a freshly cooked meal! The big table in the kitchen was beautifully set with the inpatient guests, some of whom had their systems hooked up, but that didn't stop them eating together - like a big family, some were fed by the volunteers. The guests smiled and waved their hands as they were introduced to us. From the outside you wouldn't know that these are people who are aware that they are spending the last months/weeks of their lives.

Staying and consultations at the day hospice are free; the only thing guests have to pay for is seven euros for a meal.

The Day Hospice is staffed by three palliative care doctors, six nurses and 50 volunteers. Volunteers are the core of the hospice. They do almost all the psychosocial care - cooking, helping with meals, reading books, painting together, playing games, walking, etc. Of course, volunteers are prepared for this work through an intensive training course (120 hours of training, 40 hours of practice) so that they can give people what they need at this stage of their lives: time, care and conversation to alleviate fear and loneliness. Although volunteers cannot replace professional medical care, they can provide vital support.

Currently, 57 hospice duty nurses volunteer in Salzburg - in close collaboration with the day hospice doctors and nurses, as well as the palliative care team, as the hospice duty nurses also visit patients in their homes.

 

"Raphael Hospice Salzburg, which opened on 15 March 2002, has ten spacious, bright single rooms, which the patient can decorate as he or she wishes, with favourite paintings on the walls, photographs of loved ones and houseplants. The room also has a second bed for a loved one if they wish to stay overnight. Each room has a spacious bathroom so you can push a wheelchair and take a shower. Washing patients is one of the problems that Hospiss Māja carers face in their daily care of patients in their own homes. Many bathrooms are so small (even in homes that are spacious enough) that a wheelchair cannot get into them to wash comfortably. Most of the time, relatives wash patients with wet wipes, but this is not proper washing. Moreover, running water has been shown to be healing.

Each room has a spacious balcony or a terrace on the ground floor. People want to spend as much time as possible outdoors, they ask to be covered with at least five blankets, but to be outside, to be in nature!

The hospital does everything it can to provide a homely, family environment. There is a communal kitchen where volunteers cook breakfast every morning. Volunteers also play an important role in the hospital, spending a lot of time with patients, doing whatever the patient wants and what the volunteer knows (gentle hand massages are popular), as well as being on duty at night.

The average time patients spend in hospital is three weeks. The chief doctor admits that people still have many myths about the place, it used to be called "the home of death", but after the first few days most people conclude: "if I had known what it was like here, I would have come sooner!"

Because the patient, his wishes, are the most important thing here. Almost nothing is denied, and yes, people are allowed to smoke before they die (but not in bed and not with an oxygen machine), or to have a beer or a cognac.

 

The hospice team consists of 15 qualified health and care workers, three doctors, a social worker, a chaplain, two psychotherapists, two physiotherapists and 20 trained volunteers. A doctor and three nurses are on duty every day (for ten patients) in one shift, i.e. on site. It is important that the patients' physical complaints are completely eliminated so that they are relieved of pain. Special therapists work with the patients, including a "therapeutic touch" therapist and a music therapist. We met music therapist Rita Bidvaitis, a Lithuanian who visits hospice patients once a week with very special musical instruments. For example, the vibroacoustic instrument "Bass Tao Leier" - a special four-octave stringed instrument that can be played in direct body contact, i.e. on the patient's body or on the bed. The rhythmic, sparkling, meditative sound of the Tao Leier has become one of the main healing tools in music therapy, with amazing effects.

 

Staff have always discussed with the patient their wishes at the time of death - whether they want to call their family if they are not around, whether they want someone else to be there, such as a volunteer, to support and hold their hand, or whether they want to die alone. After death, the body is washed, cleaned (unless the relatives have expressed a wish to do so themselves) and dressed so that the relatives can say a humane goodbye if they were not present at the time of death.

 

How much does it cost? The current daily rate for inpatient care is €95 per day, which is only a fraction of the actual cost, but the hospice hopes that one day it will be free. They also still have goals to strive for

Link: How to die in Austria?

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The event is financially supported by the Society Integration Fund from the Latvian state budget
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Hospiss LV

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SIA Hospiss Māja invites caregivers for people in palliative care to join its team. Work at the client's home in Riga and suburbs.

Each carer works with one client, 8 hours per working day.

Job duties:
- provide quality care to the client, working as part of an interdisciplinary team;
- providing personal hygiene and meals for the client;
- to ensure your well-being and enjoyment;
- work with the client's family;
- document the actions taken;
- regularly monitor the client's health and report any changes.

Key requirements:
- understanding palliative and hospice care;
- a desire to help people through your work, empathy and sincerity;
- a sense of responsibility, integrity, decision-making and the ability to act appropriately in critical situations
- knowledge of Latvian;
- Russian language skills will be an advantage;
- interoperable Covid-19 certificate.

We offer:
- pre-employment training
- salary 1089 EUR (gross);
- reimbursement of public transport costs
- health insurance (after probation)
- working in a multidisciplinary team
- regular training and supervision

Please send your CV and a motivation letter marked "Caregiver" to [email protected].
Please be informed that the personal data you provide in your application documents will be processed in the context of this selection.

We will contact the candidates and invite them for interviews.

PRIVACY POLICY

This privacy policy, hereinafter referred to as the Policy, describes how and what personal data is processed by the HOSPISS LV Foundation (hereinafter referred to as the Foundation) on the website hospiss.lv.

This Policy applies to:

  • both in cases where the Foundation is deemed to be the Controller pursuant to Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data and repealing Directive 95/46/EC (hereinafter "the Regulation");
  • both in cases where the Foundation is considered a Processor under the Regulation;
  • both in cases where the Foundation is considered a Third Party under the Regulation.
  • if a natural person contributes (monetary donation, food donation, donation of appliances, equipment or objects, volunteer work) or is otherwise associated with the work of the Foundation;
  • If a natural person receives any form of support from the Foundation;
  • if the Foundation processes the personal data of natural persons on the basis of the legal grounds set out in the Regulation.
  1. DEFINITIONS

Processing means any operation or set of operations which is performed upon personal data or upon sets of personal data, whether or not by automated means, such as collection, recording, organisation, structuring, storage, adaptation or alteration, retrieval, consultation, use, disclosure, transmission, dissemination or otherwise making available, alignment or combination, restriction, erasure or destruction.

Personal data means any information relating to an identified or identifiable natural person ('data subject'); an identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as his or her name, identification number, location data, online identifier or to one or more factors specific to his or her physical, physiological, genetic, mental, economic, cultural or social identity.

A controller is a natural or legal person, public authority, agency or other body which, alone or jointly with others, determines the purposes and means of the processing of personal data.

A processor is a natural or legal person, public authority, agency or other body which processes personal data on behalf of the controller.

Third party means a natural or legal person, public authority, agency or body other than the data subject, the controller, the processor and persons who, under the direct authority of the controller or processor, are authorised to process personal data.

The data subject is any natural person who supports the Foundation or receives support from the Foundation.

  1. APPLICABLE LAW

2.1 Regulation 2016/679 of the European Parliament and of the Council on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (27 April 2016);

2.2 Law on Associations and Foundations;

2.3 Law on Public Benefit Organisations;

2.4. laws, regulations and other documents governing taxation and accounting.

  1. GENERAL RULES

3.1 This Policy provides general information on how the Foundation processes personal data. More detailed information on the processing of personal data is provided to individuals in the course of their day-to-day work, in internal documents and in response to written requests from data subjects.

3.2 The Foundation shall ensure the confidentiality of personal data within the framework of the applicable laws and regulations and has implemented appropriate technical and organisational measures to protect personal data from unauthorised access, unlawful processing or disclosure, accidental loss, alteration or destruction.

3.3 Where the Foundation, as the Controller, uses processors (for example, the assistance of a company providing accounting services), the Foundation shall take the necessary measures to ensure that such processors process personal data in accordance with the Foundation's instructions and in compliance with applicable laws and regulations and shall require appropriate security measures to be taken.

3.4 If the Foundation updates this Policy, the current version of the Policy will be published on the Foundation's website hospiss.lv. Historical versions of this Policy will be available from the management of the Foundation. It is the responsibility of each individual to keep abreast of changes made by the Foundation.

3.5 In order to provide the Public with a more complete picture of the activities carried out by the Foundation, the Foundation also processes data collected from the activities carried out.

3.6 When the data subject visits the Foundation's website, his or her data (IP address) may be processed. When clicking on Facebook, Instagram or other links, the providers of the respective website, such as Facebook or Instagram, will initiate the processing of the data subject's data and will access the data subject's data in accordance with their terms and conditions, which we recommend that you consult on the website of the respective provider.

3.7 The Foundation does not carry out profiling of personal data.

  1. CATEGORIES AND EXAMPLES OF POSSIBLE PERSONAL DATA TO BE PROCESSED

No.

Data category

Examples of data types

Some examples of data processing

1.

Personal identification data

Name, surname, personal code

You, your relatives contact the Foundation for support or provide financial or other support to the Foundation, you are enrolled in our Friends Club or any of our other projects / campaigns

2.

Contact details of the person

Home address, telephone number, e-mail address

You sign up to help the Foundation or you ask the Foundation for help by leaving your contact details

3.

Data on activities carried out

 

Type, description, start and end date

You participate in the Foundation's activities or receive support

4.

Photos / video

Digital image of a person, voice recording

You participate in the Foundation's activities or receive support, this is recorded by photo or video

5.

Communication data

Incoming/outgoing communication, phone calls, correspondence, content

You communicate with the Foundation

6.

Settlement details

 

Settlement system account number, bank account number, date, amount, date of payment, purpose of payment

You provide financial support to the Foundation

7.

Performed on social networks

Photos, comments

You comment on the Foundation's activities on social networks

8.

Actions taken on the website

IP address, information about the activities carried out on the website

You are visiting a website

9.

Health data

Information on functional impairments, their severity, diagnosis in exceptional cases, treatment required

You have asked for help, the professionals analyse it before they support you, during the support

10.

Details of authorised persons, legal representatives

Name, surname, personal identification number, basis of representation, contact details

You are represented by another person in cooperation with the Foundation

11.

Volunteer data

Name, surname, contact details

Information needed by the Foundation to ensure transparency of the services required

12.

Donor data

Name, surname, personal identification number, account No Amount donated

You donate money to our projects

13.

Foundation staff data

Name, surname, personal ID, address, account No, phone No, etc.

Information needed by the employer to comply with the statutory requirements regarding the processing of your data as an employee

14.

Other data

Other data

You carry out other activities related to the Foundation's activities

  1. LEGAL BASIS FOR PROCESSING

5.1 The legitimate interests of the Foundation - consistent with the objectives of the Foundation. The Foundation has the right to process personal data to the extent that it is objectively necessary and sufficient to fulfil the purposes for which the Foundation was established.

5.2.Compliance with legal obligations - The Foundation is entitled to process personal data in order to comply with the requirements of regulatory enactments, as well as to respond to legal requests of the state and local government, to provide information on donations received and their use.

5.3 Data Subject Consent - The data subject consents to the collection and processing of personal data for specified purposes. The data subject's consent constitutes his or her free will and independent decision, which may be given at any time, thereby authorising the Foundation to process the personal data for the specified purposes. The data subject's consent is binding on him or her if given in writing, including by email, or by implied consent, for example by being photographed with representatives of the Foundation when receiving support or by sending the Foundation a photograph of himself or herself. The data subject shall have the right to withdraw his or her prior consent at any time through the indicated channels of communication with the Foundation. The notified changes will take effect within three working days. The withdrawal of consent shall not affect the lawfulness of processing based on consent prior to the withdrawal.

5.4 Protection of vital interests - The Foundation is entitled to process personal data in order to protect the vital interests of a natural person, e.g. where the processing is necessary for humanitarian purposes, for monitoring natural and man-made disasters, in particular epidemics and their spread, or in humanitarian emergencies (acts of terrorism, cybercrime, technogenic disasters, etc.).

5.5 Exercise of official authority or public interest - The Foundation is entitled to process data for the performance of a task carried out in the public interest or in the exercise of official authority vested in the Foundation by law. In such cases, the basis for processing personal data is included in the regulatory enactments.

5.6.Conclusion and performance of the contract - in order for the Foundation to conclude and perform a contract with any cooperation partner, the Foundation must collect and process certain personal data that is collected prior to entering into a contract with the Foundation or during the course of a contract that has already been concluded.

  1. PURPOSES OF DATA PROCESSING

The purposes of the processing of the Foundation's data are the same as its founding purposes, which are as follows:

6.1. to create and promote a respectful and unprejudiced understanding of hospice services based on human choice in Latvian society among the general public, state and local government employees, health care and welfare professionals, thereby increasing the capacity of individuals to actively participate in maintaining, improving and promoting their own and their family members' health;

6.2. building, promoting and raising the profile of volunteerism and meaningful assistance among the Latvian population in the field of palliative care and hospice services, including the donation of property, financial resources, time and knowledge without remuneration;

6.3. to support the establishment of new palliative and hospice care providers, as well as the education of their staff, medical and social assistance professionals in palliative and hospice care, which would include the systematic provision of knowledge and skills, in addition to the national education system;

6.4. to identify people in Latvia who are in nursing homes, hospitals and other care institutions and who are in need of palliative or hospice care in order to promote their health and improve the overall physical, mental and social well-being of society;

6.5. to undertake a range of activities with the aim of establishing a new hospice and/or palliative care centre(s) in Latvia;

6.6. to provide any kind of support to those in need;

6.7. provide a range of social services.

The Foundation shall be entitled to process the data for the above purposes as well as for other purposes by providing the data subject with the possibility to opt-out of the processing, unless such opt-out is restricted by any laws or regulations.

  1. DATA SUBJECT RIGHTS

The data subject shall have the right with regard to the processing of his/her data classified as personal data under the applicable laws and regulations. These rights are generally:

7.1 Receive information about the processing of your data in accordance with the requirements of the Regulation;

7.2. to request the rectification of your personal data if it is inadequate, incomplete or incorrect;

7.3. object to the processing of your personal data where the processing is based on legitimate interests;

7.4 Request the erasure of their personal data, for example, if the personal data is processed on the basis of consent and the data subject has withdrawn their consent. This right shall not apply if the personal data whose erasure is requested are also processed on the basis of another legal basis, such as a contract or obligations arising from the relevant laws and regulations, or their retention is required by applicable laws and regulations;

7.5. to restrict the processing of their personal data in accordance with applicable laws and regulations, for example, at the time when the Foundation is assessing whether the data subject has the right to have their data erased;

7.6. to be informed whether the Foundation processes the personal data of the data subject and, if it does, to have access to them;

7.7. to receive their personal data provided by the data subject to the Foundation and processed on the basis of consent and contractual performance in written form or in one of the most commonly used electronic formats and, if possible, to transfer such data to another Foundation (data portability);

7.8. withdraw your consent to the processing of your personal data;

7.9. not be subject to fully automated decision-making, including profiling;

7.10. to lodge complaints regarding the use of personal data with the Data State Inspectorate (www.dvi.gov.lv) if the Data Subject believes that the processing of his/her personal data violates his/her rights and interests in accordance with the applicable laws and regulations;

7.11 The Foundation is obliged to respond to the data subject's request within 30 days of receipt of the request, if necessary by requesting additional information, such as identification data, in order to verify the identity of the data subject without any doubt.

  1. CONTACT

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  1. SHELF LIFE

Personal data will be processed only for as long as is necessary to fulfil the purpose of the processing. The retention period may be justified by the legitimate interests of the Foundation, internal documentation or applicable laws and regulations (e.g. accounting laws, etc.).

  1. WAYS OF OBTAINING PERSONAL DATA

10.1.The Foundation obtains personal data when a natural person:

10.1.1. support the Foundation;

10.1.2. receive support from the Foundation;

10.1.3. ask the Foundation for more information about the Foundation's aims, activities, etc;

10.1.4. participate in the activities of the Foundation;

10.1.5. being photographed or filmed within the framework of the Foundation's activities;

10.1.6. post comments on social networks;

10.2 The Foundation may process personal data received from third parties (e.g. social services, relatives) in accordance with the provisions of the Regulation.

  1. PROTECTION OF PERSONAL DATA

11.1 The Foundation shall ensure, keep under review and improve safeguards to protect personal data against unauthorised access, accidental loss, disclosure or destruction. To ensure this, the Foundation applies modern technology, technical and organisational requirements, including the use of firewalls, intrusion detection, analysis software and even data encryption where necessary.

11.2 The Foundation shall carefully examine all cooperation partners with whom personal data are jointly processed, as well as assess whether the cooperation partners (personal data processors) apply appropriate security measures to ensure that the processing of personal data is carried out in accordance with the Foundation's delegation and the requirements of regulatory enactments.

11.3 The Cooperation Partners are not allowed to process personal data for their own purposes.

11.4 The Foundation shall not be liable for any unauthorised access to and/or loss of personal data that is beyond the control of the Foundation, for example due to the fault and/or negligence of the Client, the Affiliate, a third party or the data subject.

  1. PROCESSING AREA

12.1 Personal Data is generally processed in the European Union/European Economic Area (EU/EEA), however, in some cases it may be transferred to and processed in countries outside the EU/EEA, such as posting on Facebook, Instagram or elsewhere.

12.2 The transfer and processing of personal data outside the EU/EEA may take place where there is a lawful basis for doing so, namely for the performance of a legal obligation, the conclusion or performance of a contract, and appropriate safeguards are in place. Adequate safeguards include, for example:

- There is an agreement in place, including standard clauses or other approved terms of an EU contract, code of conduct, certifications, etc., which have been approved under the General Data Protection Regulation;

- In the non-EU/EEA country where the recipient is located, an adequate level of data protection is ensured in accordance with the EU Commission Decision;

- The recipient is certified under the Privacy Shield (applies to recipients located in the United States).

12.3 Upon request, the data subject may obtain further information on the transfer of personal data to countries outside the EU/EEA.

  1. CONTACT

13.1 The Customer may contact the Foundation in relation to queries, withdrawal of consent, requests, exercise of data subject rights and complaints about the use of personal data.

13.2 The Foundation's contact details are available on the website: www.hospiss.lv, in the Contacts section.